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Sunday, July 5, 2015

TESARO pharmaceutical - Will Watch Me Die

The pharmaceutical company, TESARO  are refusing to "unblind" the Niraparib NOVA study for me even though my cancer is progressing. It's in my contract which states that they will notify my medical team whether or not I was receiving a placebo when deemed medically necessary. My doctors have been requesting it for two weeks! I have progression of Ovarian cancer. I'm posting this publicly in hope that someone "out there" can help me. The clock is ticking and my life is hanging.... If you or someone that you know can help me, please reach out to me. Thank you!

You can sign the petition by clicking this link.


This is an e mail that I sent them yet have received zero response:


To Whom It May Concern at TESARO,

Regarding: Niraparib NOVA Study Breach of Contract

I've been in the Niraparib study for 10 months and am now having a recurrence. This is my 2nd recurrence of ovarian cancer. The Niraparib Tesaro group is refusing to unblind the study and tell us what I was taking. This is an illegal breach of the contract and unethical.  The contract clearly states that if medically necessary TESARO are legally bound to  inform my doctors whether your drug company was giving me placebo or PARPs. 

Under these circumstances, I cannot get into any other drug trials or receive the FDA approved PARPs inhibitor, Olaparib, unless we have proof from Tesaro that I was on a placebo.... AND it would be a waste of my time (and life) to give me PARPs again if the Niraparib didn't work.

TESARO have proven themselves to be unreliable and unethical - grounds for litigation and possible closing down of the entire Niraparib drug trial.

I am now pursuing the option of  litigation against TESARO. Your representatives admitted (on the phone to my oncologist) that they are in breach of contract and know that TESARO will lose the case. I also plan to sue for pain and suffering. The treatment I'm receiving by TESARO is cruel and inhumane. I have documented proof of physical symptoms caused by your company's insensitivity and cruelty.

My life hangs in danger and I will take every measure necessary to insure that my legal rights are fulfilled. I will go after you with all I have and I have limitless funds to do so.

Please make sure that your company does the right thing. Your doctors needed to provide my team of oncologists with the information as promised both in writing and during many phone and e mail requests and made by my the Shaare Zedek Medical Center.

Sincerely,
Patient #1
Shaare Tzedek Medical Center, Jerusalem Israel



Thursday, July 2, 2015

Keep My Soul Hungry

Just when you think that life is going in one direction, a gust of apocalyptic wind whooshes in and changes your whole life direction. You think it's one thing yet, it's another. Cancer comes and cancer goes.... and it comes back again. Everyone has it. It comes in many forms: depression, anxiety, illness, and grief.
 
This world is flawed. Every individual is blemished and imperfect and generations of our People survived the worst of times and produced a plethora of successful leaders, artists, and thinkers. Eras that were worse than most of us can imagine gave birth to the greatest periods of development, technology, and advancement of Humankind.

Perhaps this is no epiphany to some however I am beginning to think struggles and challenges are God's gifts to our souls - so we can grow and become closer to Him. Cancer is a parasite that lives only to destroy and overtake the physical body.  Life challenges and struggles are the cancers of the soul. These bloodsucking trials enter our bodies and our souls and we conquer them - maybe for a day, a week, or for years, and make us change and grow.

Maybe I should say, Thank YOU God for loving me and caring enough to challenge my existence on this Earth, making my soul stronger, more involved and rugged. We may live in denial but our lives as mortals are so very short. We are Earthbound for a flash in time while our souls are eternal.

I'm impulsive. I get bad news and I flip out, cry, and lose many nights of sleep. I calm down with thought and some time. I can begin to grope the monstrosity and the terror and feed it to my hungry soul and I pray I can digest it into encouragement and confidence.

I pray to You, God, keep my soul hungry. Let me eat the nourishing afflictions that You send to my body and spirit. Make my eternal soul greater before You take my body away.

Keep my soul hungry. Make me grow better. I know my soul is indestructible and these tribulations will bring me closer to You. I am not the vessel that is a temporary home to my soul. I am my spirit and I am forever.

Wednesday, July 1, 2015

Love Faith And Flying High



Sail
This is how I show my love
I made it in my mind because
Blame it on my ADD baby
This is how an angel dies
Blame it on my own sick pride
Blame it on my ADD baby
Sail, sail
Sail, sail, sail
Maybe I should cry for help
Maybe I should kill myself (myself)
Blame it on my ADD baby
Maybe I'm a different breed
Maybe I'm not listening
So blame it on my ADD baby
Sail, sail
Sail, sail, sail
La la la la la la, la la la la la la
la la la la la la, la la la la la la
Sail, sail
Sail, sail
Sail, sail
Sail, sail, sail

(Sail - AWOLNATION)